: S Jeni – Sorry to hear that you’ve been going through a shed this week particularly when you’re traveling.Shedding is horrible anytime it occurs, but for me I always find it even more troublesome when I’m traveling and away from home, probably because I’m outside my comfort zone.In the hairloss forums I’ve read of so many people that have had scalp pain and hair loss. My hair has been falling out like crazy this week – I’ve been flying and travelling in a new climate. I’ve always had scalp burning/stinging/itchiness since I lost my hair, but I know a lot of people with Totalis that have no problems at all.I don’t know if that can make it worse, but I get balls of hair coming out every few hours. Does anyone know why it would be different for people with the same condition?But for myself when I do get it, it hurts to wash my hair, touch my scalp or even lie on a pillow. Little hairs are finally poking out of the back of my head through the long hairs the last 2 weeks) almost in the order they fell out in Feb and March top, sides then back.So far the only thing that has made sense to me is what I read on wikipedia “A theory behind the condition is that nerves innervating scalp hair follicles send pain messages back to the brain when the follicle no longer has a hair in it, in a similar way to phantom limb pain. My scalp hurts so much with a burning sensation that goes away after a little while, or perhaps I ignore it or my tolerance level has increased, I’m not sure. Going back to the what feels like HOT SPOTS, or a burning feeling (no red scalp) sometime itching, mostly top mid back of the head. I did find a dermatolgist who was familiar with this disorder and explained anti-depressants have worked on most of her patients. The burning sensation is still strong and there are a few bumps on the top of my head that are, too.Be strong, From Milly Millie: What did the doctor say about the burning and pain when you went for your appointment the week of the 17th? Suffering right along with your for the past 20 years, Pam Hi. After that my scalp hurts and hair has been falling out and breaking a lot. After 8 years, I finally figured it out, and I wanted to post this note just in case my thoughts can help other people.This is the first time I have had scalp pain with hair loss. I use a sticky roller to sweep my clothes after I comb or wash my hair and it is always filled with my precious hair. My first experience with this was 30 years ago when I was in high school, and it disappeared as mysteriously as it appeared.
The thing I found interesting about the Wikipedia definition was this part “A theory behind the condition is that nerves innervating scalp hair follicles send pain messages back to the brain when the follicle no longer has a hair in it, in a similar way to phantom limb pain.” That is definitely an explanation.There is usually one hair or a group of hair that is very tender. Sometimes the hair is brittle and literally snaps off. Now I have less hair, I can usually find where the problem is. I wish I could numb my head with some anagelsic or something?? My dermatologist put those shots in my scalp, and that helped for a week. I get desperate and try anything–I asked my dermatologist what to do and she said “Whatever works”. Blessings, Lynn Hello Lynn, My scalp not only hurts, but it’s very,very red. The more shampoos I try, it just seems to make it more irritated. My scalp feels hot,sore, and “crawlie” or “tinglie”. If hurts to wash my hair, it even hurts when the wind blows it.I know the relief will happen when I find the tender spot, and do something to ease the sensation. I went to the dermatologist and she said she saw nothing wrong with my scalp so she doesn’t know what is causing it.I had no idea what caused this and why it was sporadic, it would last for while then just disappear, last episode I had was this past July.Apparently there a correlation between hair loss, telogen effluvium and scalp pain, also called trichodynia.This is what I found about it on Wikipedia: Trichodynia is a condition where the patient experiences a painful sensation on their scalp. Trichodynia often is associated with hair loss, but some studies show it has no connection to hair loss.Often there is an underlying psycho-somatic cause, such as stress, depression or anxiety.Only a few studies have been conducted on this condition.A theory behind the condition is that nerves innervating scalp hair follicles send pain messages back to the brain when the follicle no longer has a hair in it, in a similar way to phantom limb pain.The role of vasoactive neuropeptides in the interaction between the central nervous system and skin reactivity is discussed.In the absence of any correlation with quantitative parameters of hair loss or specific morphologic changes of the scalp, management remains empiric and tailored to the individual.